We had a big day at Children's Mercy on Monday this week. First, both boys had their 6 month check-ups with the Muscle and Nerve Clinic for their BMD. This will occur every 6 months from here on out to check for progression in muscle weakness, or other health issues associated with BMD. The boys …

Continue reading Check-ups, Cast Removal, and Finding a Balance

One morning last week we were getting everyone ready for school and work, and experiencing the usual craziness that comes with getting 4 people out the door on time. Roman was playing with our dog Nikki in the living room while Mark, Chase, and I were in the kitchen chatting, assembling lunches and eating breakfast. …

Continue reading BMD Awareness Week