This guy cracks me up every day. I told him he needed to get dressed because he was seeing the doctor in a few hours and this was the outfit he picked out. I decided to just let him wear it because he was so worried about getting a blood test that it dominated his …
Continue reading Roman’s Appointment with the Muscle and Nerve Clinic
Well, I wish I knew the answer to this question. Or, maybe I don't. If I had the option of having a crystal ball to look into the future and see what this disease will look like in my boys in 5, 10, 15 years from now, I don't know that I would want to …
At Chase's follow-up appointment where we met with Dr. Rinaldi and everyone in his team, the genetic counselor talked about the specifics of a genetic disease. Becker's Muscular Dystrophy, as mentioned prior, is an X-linked disease. At this point, there was a 1/3 chance that Chase just had a random mutation within his individual DNA …
One of the many questions I've been asked by friends and family is: What alerted me to there being something wrong with Chase? What symptoms did I notice that led me to taking him to the doctor? I feel a little bad for the person who asks me this question because it is not a …
I've gotten so many great questions from family and friends about what exactly is Becker's Muscular Dystrophy and what does that mean for my boys? I wanted to start with posting the medical explanation of Duchenne/Becker Muscular Dystrophy since the names are often used together or interchanged. They are basically the same condition, just on …
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